My Personal Journey with Lupus & Chronic Lyme Disease


Life has a way of throwing unexpected challenges our way, and for some, those challenges come in the form of chronic illnesses. In my case, it’s a double whammy – living with both Lupus and Chronic Lyme Disease. These two conditions have reshaped my life in ways I never imagined, taking me on a journey filled with ups and downs, resilience, and self-discovery.

The Unseen Battle

Living with Lupus and Chronic Lyme is like fighting an unseen battle every day. On the surface, I may appear healthy, but beneath the facade lies a constant struggle with fatigue, pain, and the uncertainty of what each day might bring. Lupus, an autoimmune disease, and Chronic Lyme, a tick-borne illness, have teamed up to create a unique set of challenges that I confront with unwavering determination.

The Rollercoaster of Symptoms

One of the most challenging aspects of living with these conditions is the unpredictable nature of their symptoms. Some days, I wake up feeling relatively normal, ready to tackle the world. However, by mid morning I’m wiped out. Other days, I’m faced with debilitating fatigue and joint pain that make even the simplest tasks feel like insurmountable obstacles. It’s a rollercoaster ride of symptoms that requires adaptability and patience, both from myself and those around me.

The Importance of Support

Navigating the complexities of Lupus and Chronic Lyme is not a solo journey. Having a strong support system is crucial. Friends and family who understand the nuances of these conditions provide a pillar of strength during the toughest times. Their empathy and willingness to learn about the challenges I face make all the difference. It’s a reminder that I am not alone in this battle, and that in itself is a source of comfort.

Adapting to a New Normal

Living with chronic illnesses has forced me to redefine what “normal” means. I’ve had to adapt my lifestyle, learn to prioritize self-care, and find joy in the little victories. It’s about understanding my limitations without letting them define me. Some days, “normal” might mean washing a load of clothes, while on others, it’s celebrating the ability to get out of bed and face the day.

The Power of Self-Care

Self-care has become my lifeline. Whether it’s spending the morning at the spa, indulging in hobbies that bring me joy, or simply taking the time to rest, self-care is not a luxury but a necessity. It’s about listening to my body, honoring its needs, and finding moments of peace amidst the chaos. The journey with Lupus and Chronic Lyme has taught me that self-care is not selfish; it’s survival.

Finding Purpose in the Pain

Amidst the challenges, there is a silver lining – a sense of purpose that has emerged from the pain. Living with Lupus and Chronic Lyme has ignited a passion for advocacy and awareness. I’ve become an advocate for myself and others facing similar battles. By sharing my story, I hope to break down the stigma surrounding chronic illnesses and inspire a greater understanding of the daily struggles faced by millions.

Living with Lupus and Chronic Lyme is a journey filled with twists and turns, but it’s also a journey of resilience, growth, and self-discovery. Each day brings new challenges, but with a supportive network, a commitment to self-care, and a sense of purpose, it’s possible to navigate the complexities of these conditions and find moments of beauty amidst the struggle. In sharing my story, I hope to shed light on the very real experience of living with chronic illnesses, fostering empathy and understanding in a world that often underestimates the strength it takes to face the unseen battles within.

Thank you so much for stopping by. Please be sure to like, share and subscribe to our blog so you’re in the know when we have a new blogpost. You can also find Windy’s Journey podcast now streaming on Apple Podcasts, Google Podcasts, iHeartRadio, AmazonMusic, and Spotify! 

We need your support to help increase awareness about chronic illness and the negative impact it has on individuals and their families. Share this with someone who is chronically ill as it is my life’s goal to Empower | Encourage | Inspire others who are on this journey with me.

XO- Windy

Daniel 3:18 “And if not, He is still good! “

Follow me on social media:

IG: @windysjourney

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Guilt & Chronic Illness

Something I’ve noticed as I navigate living with chronic illness and connecting with others who are on the same path, nobody really speaks about the guilt that comes with chronic illness. I know in my own life I certainly have felt guilty for being sick and not being able to do the things I used to be able to do with and for myself and my family. My chronic illness is debilitating, which means there are times when I have to say “No” to things. I need help with day to day things and I am unable to do things like make dinner without help, clean the house, help my daughter with her homework, and the most obvious thing I can no longer do is work.

Tbe pain and the fatigue that comes along with chronic illness is so intense that it completely wipes me out. The thing that has been really causing me to feel guilty is cancelling plans. Calling or texting a family member or friend to say “I can’t make it” causes me to feel like I’m letting someone down…like a failure and a disappointment. I know my family/friends understand but that doesn’t stop the negative feelings from creeping in. To take it a step further, when it comes to my husband I feel like a burden. I count on my husband for just about everything and I can’t imagine the amount of pressure that places on him. He takes me to most of my doctor appointments, does the grocery shopping, takes our daughter to school and picks her up, and everything in between. I step in and help out when I can, but it wipes me out completely. Driving my daughter to school and back home takes all the energy and strength I have.

ISOLATION

Whenever I start to feel guilty and down about my situation I have noticed that I tend to isolate myself. I get in my bed, roll up in a ball, and try my best to block out all the things I can no longer do. I leave text messages unread, don’t answer phone calls, and do not want to go anywhere. I am fully content and ok with being alone in my bedroom thinking about all the things I wish I could do. The guilt is so overwhelming at times…it oftentimes takes my breath away. It’s hard to explain, though I feel some of you know exactly what I mean as you’ve been through it yourself. Chronic illness is not fun nor is it vacation or cake walk. It’s hard, with twists and turns along the way. Isolation, I feel, is ok in moderation as it allows for time to collect and reflect on things. It’s important to allow family and friends in so you don’t stay in that space for long periods of time as that would be unhealthy and could be harmful to your mental health. The guilt does not last for too long but the sadness that comes along with the guilt can linger. It’s always in the back of my mind. It can sometimes lead to anxiety as well. What I mean by that is I become anxious when someone asks to spend time with me for fear that I may need to cancel because of my illness. You have know idea what goes on inside when a friend of mine wants to meet up for coffee or lunch. I will say yes hoping I will feel well enough on the day of.

It’s important for me to remember that my life will not always be like this and I have a lot of people in my life who love me and understand my situation. My family and close friends are always ok whenever I need to cancel or whenever I need to say “No”. They never hold things against me, even when I have to cancel the day of. I need to push through the guilt I feel and focus on getting better…there’s no reason for me to feel guilty. This is a season in my life where I feel God working on me in order to get me closer to becoming the person He created me to be. Chronic illness is not my identity and it is not who I am. The enemy is working overtime to get me to focus on my illnesses and all the things I can’t do and all the things I am missing out on, but the truth is my chronic condition is teaching me so many things about myself. I realize the following things about Windy:

  • I am stronger than I thought
  • I am resilient
  • I enjoy my alone time
  • I am fearless
  • I am a warrior in the Spirit
  • I am hopeful
  • I am wise

Although this journey has been rough, I am thankful to God for all the things I am learning about myself. I know that I will have a beautiful testimony that I will be able to share with others about how faithful God has been to me and my family every step of the way. No guilt, no shame in Jesus’ name!

Thank you so much for stopping by. Please be sure to like, share and subscribe to our blog so you’re in the know when we have a new blogpost. You can also find Windy’s Journey podcast now streaming on Apple Podcasts, Google Podcasts, iHeartRadio, AmazonMusic, and Spotify! 

We need your support to help increase awareness about chronic illness and the negative impact it has on individuals and their families. Share this with someone who is chronically ill as it is my life’s goal to Empower | Encourage | Inspire others who are on this journey with me.

XO- Windy

Daniel 3:18 “And if not, He is still good! “

Follow me on social media:

IG: @windysjourney

FB: @windysjourney

X: @windysjourney